Welcome to PetForums

Join thousands of other pet owners and pet lovers on the UK's most popular and friendly pet community and discussion forum.

Sign Up

anyone else suffer from miniere's syndrome/disease?

Discussion in 'General Chat' started by frags, Aug 4, 2009.


  1. frags

    frags PetForums VIP

    Joined:
    Feb 5, 2009
    Messages:
    5,147
    Likes Received:
    116
    im having an attack of this at mo and it started last tuesday and seems to be getting a bit worse!
    if you dont know what it is its swelling of the inner ear and cause's dizziness, sickness etc its a bit like vertigo!

    ive been given tablets to help with the dizziness but they make me soooo tired and drowsy i cant win.

    im feeling so down about it and just needed to see if anyone else has attacks and how long it last.
     
  2. rottiesloveragdolls

    Joined:
    Nov 2, 2007
    Messages:
    8,192
    Likes Received:
    287
    oh im sorry to hear that frags :( hope you feel better soon x
     
    #2 rottiesloveragdolls, Aug 4, 2009
    Last edited: Aug 4, 2009
  3. sullivan

    sullivan PetForums VIP

    Joined:
    Aug 29, 2008
    Messages:
    5,307
    Likes Received:
    66
    Have never had it but wishing you a speedy recovery. Get well soon.
     
  4. frags

    frags PetForums VIP

    Joined:
    Feb 5, 2009
    Messages:
    5,147
    Likes Received:
    116
    ahhh thank you rottie
     
  5. owieprone

    owieprone PetForums VIP

    Joined:
    Nov 6, 2008
    Messages:
    5,043
    Likes Received:
    200
    it all depends on how bad you have it, it changes from person to person so no-one can tell you how long it will last.

    check out the link below, they're pretty good for recent data on how to lessen attacks and procedures:
    Ménière's Society - Helping people with vertigo, tinnitus and deafness

    and this lot have a forum, so you can talk to fellow sufferers:
    Meniere's Disease UK - MDUK

    Ask your doctor to see if there are any other drugs you can take that don't make you drowsy. However, the dizzy spells will make you tired and lethargic anyway, it may be easier to fight through them than a drug induced tiredness that will only dissipate once the drug has been broken down, which might last longer than your spell.

    Has your GP sent you to an ENT specialist to help you deal with it or are you just seeing your GP? Ask for a referral to an ENT specialist (preferably who specialises in Meniere's but any will do for the first consultation you can then be re-referred to the right person), they will be able to help you much more than a GP, as they can figure out what is triggering it and treat you accordingly.
     
  6. Ladywiccana

    Ladywiccana PetForums VIP

    Joined:
    Feb 24, 2008
    Messages:
    10,892
    Likes Received:
    492
    Good links Owie :D :D


    Hope it settles down soon for you! See again we need a health section sticky :D :D :D :smilewinkgrin: :smilewinkgrin: :smilewinkgrin: :smilewinkgrin:
     
  7. frags

    frags PetForums VIP

    Joined:
    Feb 5, 2009
    Messages:
    5,147
    Likes Received:
    116

    thanks for the info i will have a look through now.
    it was found after a trip to the ENT clinnic years ago due to my hearing lowering and they sent me for an MRI scan which showed slight miniere's and this is only the 2nd attack of it in years.
    as i had change doc he couldnt find it on my notes so is going to look through my previous notes and have a look what they can do for me so hoping to get some help soon.
     
  8. frags

    frags PetForums VIP

    Joined:
    Feb 5, 2009
    Messages:
    5,147
    Likes Received:
    116
    good point :D
     
  9. sequeena

    sequeena PetForums VIP

    Joined:
    Apr 30, 2009
    Messages:
    21,583
    Likes Received:
    579
    Sounds terrible :(
     
  10. owieprone

    owieprone PetForums VIP

    Joined:
    Nov 6, 2008
    Messages:
    5,043
    Likes Received:
    200
    it's F'ING HORRIBLE to have tbh. you look fine, you don't look ill, you may not even look tired but you can be completely exhausted and just seem 'clumsy' to people around you, it comes and goes so you can be fine one da/week and completely miserable the next. So people can think your just putting it on and skiving.

    I would see how this attack goes, and how soon you have another (weeks months rather than years), then ask to be re-referred to ENT, especially if you have moved area it's always worth the local specialist knowing about you even if you only have attacks every so often, it means that if it becomes worse you've already had the initial consulation and aren't a new patient as such.

    hope it goes soon and doesn't come back for another 2 years :D
     
  11. frags

    frags PetForums VIP

    Joined:
    Feb 5, 2009
    Messages:
    5,147
    Likes Received:
    116
    well you have hit the nail on the head of how i feel!!! i take it your a sufferer too? yeah you must be or you wouldnt have known how i feel lol

    i hate it!!!! i feel like crap i want to vomit constantly, if i get up it feel like someone is pushing my head to 1 side but very quickly, i walk in zigzags and looked like i have mental problems when i was shopping sunday :eek:ut: my kids thought it was highly hilarious and i think my hubby was highly embarressed lol but at the end of all that i still feel terrible! im tired yet cant sleep i have no get up and go, my house is a tip!
    sorry needed a rant to someone that understands
     
  12. owieprone

    owieprone PetForums VIP

    Joined:
    Nov 6, 2008
    Messages:
    5,043
    Likes Received:
    200
    i was quite lucky, i don't have meniere's disease i had meniere's type symptoms brought on by a severe reaction (side effects) to a high dose anti-histamine i was taking for skin allergies.

    I had every single side effect that the drug had to offer that made it seem like i had meniere's that i had to go to an ENT specialist to rule it out. I had the symptoms for A YEAR, NON-STOP before we figured it out.

    So yup while i'll still suffer very very slightly when i'm very tired from the side effects (which are dissipating as time goes on) i am now fine. I know exactly how you feel tho.. i felt like such a fraud because i didn't LOOK ill. Yet going to shops (bright lights, lots of movement and lots of different colours, movement all over the shop not jsut where your looking etc) made me feel horrible. I hated going alone and had to take my OH who hates food shopping, we always found my increased clumsiness amusing tho, i'm known for walking into things and walky in a not so straight line at the best of times so this just made it all the more funny.

    I was tired alot, it stopped me playing netball as i didn'thave the energy and was frigthened of falling over and hurting someone else (not me i don't care but alot of the girls i played with were wimps).

    My best advice is to see the funny side of not walking straight if you can. I know using hand rails and always walking next to a wall can be abit frustrating sometimes, but as long as your work colleagues now about it (if you work you must tell your manager/supervisor and closest colleague, not only will it save you having to explain in detail as to why your being 'lazy' but can always add taht bit of excitement to your work.. we made a game out of it at mine while i was ill. It's like playing pirates.. you can't walk anywhere without holding on to something or you lose points.

    Do house work on your hands and knees :D, make OH do all the hot meal prep and sharpknife and grating, I'm bad with this anyway i'm forever grating fingers off, but with my symptoms i was 10 times worse. OH needs to pull his weight when your ill as it can not only help you out but can also brighten your day if you can both do it on hands and knees ;)

    the tiredness and the side effects of the dizzyness (feeling vomitous) is the killer as you can't do much about it, other than try and ignore it. Try to increase the amount of water you drink, equalize your ears (like you would if you were in a plane and your ears had gone all funny, yawning also helps) this helps if you have 'stuff' in your ears causing the problem, it makes the 'stuff' move to another part of the ear and can ease the symptoms abit, i used to do it a few times at the hour and it helped me out. if you get dehydrate it can make you feel worse, so always carry a bottle of water with your. pain killers can help with the joint/muscle pains, dont' be afraid to take them, make sure they won't react with the anti-dizzy drugs you have.

    Take your time, there's no need to rush to do anything, walk slower, grab a seat when you need it.. you ARE ill, just cos others can't see it doesn't mean your not. Pay extra attention when your doing soemthing like meal prep or stairs, as it only takes a second to do something daft.

    Most of all don't let it get to you.. you will have bad days (period hormones dont help either!) but once you accept that you are ill and this is how you'll be till it decides to bugger off.. you'll feel much better and you can work through it, ignore it, work round it.

    If your kids are old enough give them points which add up to treats or favourite meals to help you out round the house and doing shoppping. say 5 points for attempting to hoover their room ;) or 2 points for putting a cup in the kitchen for you to wash (get a stool to sit on while doign washing up lol) that sort of thing :D
    and feel free to have a blub to us :D that's what we're here for, even if you are a bit of a :eek:ut: case ;) we love you.
     
  13. frags

    frags PetForums VIP

    Joined:
    Feb 5, 2009
    Messages:
    5,147
    Likes Received:
    116
    im actually sitting here snivling to your reply, everything you say is like someone talking for me, someone knowing how i feel.
    i feel quite depressed today, fed up with feeling tired and not being able to be bothered to make my toddler a drink when he ask's for 1.
    my other 3 are older aged 12 14 and 17 so not to bad they help. yesterday i told my 12 n 14 yr old if they tided the downstairs for me id give them a fiver each :D best tenner id spent in ages lol

    i do work in local co-op but ive told them i cant work as i cant hear customers properly as its muffled and i cant work the delivery as id end up on my arse if i bent up n down too much. might not be in tomoro night either but il see how i feel, might just have the whole week of as doc said i need to rest? not sure how rest will help tho?
     
  14. owieprone

    owieprone PetForums VIP

    Joined:
    Nov 6, 2008
    Messages:
    5,043
    Likes Received:
    200
    AW PUMPKIN! it's ok you'll get better, honestly!

    if you're not sleeping well then a week of will do you good, when your 3y/o has nap, have one too ! :D the worst is knowing you have to go to work the next day and you can't jiggle about in the bed cos OH is also trying to sleep! nightmare, you NEED some time off to slow down, relax and stop stressing, get used to what your body is doing so you can get through it.

    Print off a wee guide to meniers from one of those orgs for your boss, so they can see exactly what it is your going through.. any problems that might occur becuase of it can be worked around if you both sit down and talk about what makes you worse what you can and can't do, how they can help you still work to their benefit. You have a (annoyingly sporadic) disability so the more they know about it the more you can both figure out how to get round it when it rears it's ugly head. and will also stop any resentment or anyone thinking your just being lazy or skiving.
    You could ask to put a sign up on the front of your kiosk at work to say you are hard of hearing could customers speak clearly and louder than usual.. yes you'll get folk shouting at you but at least you'll know what they're saying :D and have a pad and pen handy for them to write things down for you if need be?

    Can you pre-make the drinks for your toddler? when you're feeling well enough or get oh to do it, make snacks and things that you can stick in the fridge/cupboard and forget about till you need them, small sarnies, carrot/celery sticks and/or ryvita to have with humous/philly.

    supervise your kids to make home made cookies/rice cripsie cakes, i have a great recipe (not particularly good for you but easy to make that your kids could do it) that i'll try and mind and type in for you tmorn. That way you don't have to keep buying them and they last longer cos you can make larger quantities. also you don't have to make them as the kids will actually WANT to do it themselves. you just have to watch to make sure they're doing it right (hygenically and safely lol).

    Equalizing your ears might help your hearing, but as you're 'swelling' it might not work or take a few days at least to notice a difference.. you could ask your doc is syringing your ears (hot fluid flush) or using over the counter wax destroyers will help in anyway too.

    I know it's hard but soldier on.. push through the lethargy don't let it win !
     
  15. owieprone

    owieprone PetForums VIP

    Joined:
    Nov 6, 2008
    Messages:
    5,043
    Likes Received:
    200
    as promised :D

    oaty cookies for your kids to make and YOU to eat lol :p

    Oaty cookies

    Makes 12:

    2 cups porridge oats (any will do but large oats are finer, nom nom nom :p)
    6 tbspoon water
    ¼ cup butter
    ½ cup brown sugar
    ½ teaspn vanilla extract
    1 heaped teaspoon mixed/all spices
    ½ cup self raising flour

    Grease baking tray and preheat oven to 200 degrees C

    Cream butter and sugar, once mixed sieve in flour and mixed spices, then add oats. Add in vanilla extract and water mix well (using hands is easiest).

    Roll a small handful of mixture squash into a cookie shape and place on tray and repeat.

    Bake for 15 mins (or until lightly golden). Generally have the consistency of rock cakes, crunch outsides and soft insides :p hmmm! *munch munch*

    i made some last night! and some dwarf muffins (mine never rise). :001_tt2:
     
  16. Tigerneko

    Tigerneko PetForums VIP

    Joined:
    Jan 2, 2009
    Messages:
    16,350
    Likes Received:
    561
    I had a bout of vertigo the other week, it was terrible! It just happened while I was at work and I was dizzy for about 4 days. It seems to have gone now but from what i've read, it's likely to just be a reoccuring problem now. I didn't find the tablets very useful either, it was better for me to just ride it out :)
     
  17. Classyellie

    Classyellie PetForums VIP

    Joined:
    Apr 16, 2009
    Messages:
    6,541
    Likes Received:
    105
    Awww sorry to hear that you're not well. I have never suffered from this but hoping you feel better soon

    [​IMG]
     
  18. frags

    frags PetForums VIP

    Joined:
    Feb 5, 2009
    Messages:
    5,147
    Likes Received:
    116
    thanks for the cookie info i think i will get the kids cooking these :D

    thanks all for your words, im feeling alot better today, ive had occassional dizziness but it isnt half as bad as the last weeks so im hoping my bout is passing.
     
  19. owieprone

    owieprone PetForums VIP

    Joined:
    Nov 6, 2008
    Messages:
    5,043
    Likes Received:
    200
    no worries :D

    Hope it keeps dissipating for you :D
     
  20. amylou8

    amylou8 PetForums Member

    Joined:
    Mar 3, 2009
    Messages:
    134
    Likes Received:
    5
    I look after a lady that suffers with Menieres. She has constant attacks which result in her falling and being sick etc I went with her to the consultant but there is nothing more they can do other than give her the tablets that she already has.

    I really feel for people that suffer with this as I have seen the effect it can have on somebodys life. My friend is at the point where she is too scared to go out because she may have an attack and fall. I hope yours is more under control, just thought I would tell my story as I think people that haven't got it or seen somebody with it don't understand how bad it can be.
     
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
    Dismiss Notice